Our Mission

Ride With Clyde - Battling Cancer With Bennet Epperson

This is actually set up with the sole purpose of raising funds in various ways to help support Baby Ben, Jenny, Dave, and their families and friends during Ben's fight with cancer.

This blog seemed the best way for me to put all of my various efforts together in one place so that I could share them with others.

I will also try to update the blog with Bennet's condition and other news of his care and treatment as I hear it.

Feel free to post comments and make suggestions for other ways to raise money or generally help out. You can also get in touch with me at ridewithclyde2010@hotmail.com. Thanks in advance to everyone for their support. F*ck Cancer!

-Ben's Uncle Jake

Thursday, July 29, 2010

Just A Couple Things

So I talked to Ben's uncle Collin today.  He mentioned that Ben, Jenny, and Dave stopped by the house today.  They checked Ben's counts today and while they were low, they were not as low as the doctors had expected.  So that's good news.  The little man is through his second round of chemo.  I guess this time around was a little harder for Benny, but he's still smiling.  I think Jenny mentioned he was a little nauseous.  I think that's all I know on that front at this point.

Just as a reminder t-shirts can still be bought, just scroll through the older posts and find the links (we haven't sold any since the 6th) and you still make donations.  They're still coming in, less frequently, about one a week at this point or so.  That's it.

F*ck cancer, I ride with Clyde!

-Jake

Wednesday, July 21, 2010

Pictures and Quick Update

This is Benny's friend Macy, showing her support for our little trooper.  She is the daughter of Jenny and Dave's friend Brenda McDonald.  Thanks for sending the pictures Brenda!

So, I don't have a lot to update you all with at this point.  Bennet is crawling, which is a good sign as it tells us that the chemo is still working and the tumor is still shrinking.  Other than that, Ben should be starting his next round of chemo tomorrow assuming his blood counts are still where they should be.  Last I heard, if the counts are down they will do a transfusion instead of chemo.  But, we'll all keep good thoughts and another round of chemo will hopefully go off without a hitch.  I think this round is just going to be one day, so Ben will be at RVMC for a few hours and then will get to go home. 

That's it from me right now.  Sorry for the lack of updates lately.  I've been really busy at work and dealing with some family issues of my own.  I'll let you all know how Bennet does tomorrow when I hear from Beth.

As always, f*ck cancer, I ride with Clyde!

-Jake

Friday, July 16, 2010

Little Update

So from what Beth told me today or maybe last night, Bennet will have more blood work done next Thursday to again check his counts.  If they look good like they did yesterday, they will do another round of chemo.  I guess they're just planning on doing a big dose on Thursday and calling that good for this round.  So Benny would be in the hospital for a few hours and then he'd get to go home.  We aren't sure why they've dropped it to one day.  I for one am not going to question it.  We also don't know the plan beyond that as far as the chemo goes at this point.  If for some reason Ben's counts have gone down, there is a possibility they could do a blood transfusion instead of the chemo.  But we'll cross that bridge if we come to it.  For now we'll think chemo thoughts instead of transfusion thoughts.

I just saw on Jenny's facebook page that someone that doesn't know Bennet made him a quilt.  I think that's awesome.  So if whoever did that is out there reading this, thank you from all of us for thinking about Benny, Jenny, and Dave and for taking time out of your life to make him something so special.  From where I'm sitting, I can say that I've been amazed by the willingness of people who don't know Bennet, Jenny, or Dave to help out.  Its really cool and I'm glad Bennet, Jenny, and Dave have people in their lives that have friends with such big hearts.  Thank you to all of you.

F*ck cancer, I ride with Clyde!

-Jake

Thursday, July 15, 2010

No Transfusion, Woohoo!

Just like the title says, Bennet did not have to have the blood transfusion that was planned for today.  They did some blood work to check his counts again and his red blood cell count is back up on its own and no transfusion was needed today.  This is good news in that it again looks like Benny will be able to do the next round of chemo at RVMC and he, Jenny, and Dave will not need to make the trip to Portland for it.  They may still have to go back up to Portland for an appointment and the third round of chemo, but from what Collin told me they should be able to do at least this next round at home.  Obviously, the good thoughts and prayers continue to work.  So keep them up and I'll let you know when there's more news.

F*ck cancer, I ride with Clyde!

-Jake

Tuesday, July 13, 2010

Sorry for the Slacking

First off, to the left is our second picture of people rocking the t-shirts they bought to support Bennet, Jenny, and Dave.  This is Melissa and her daughter in-law, friends of Ben, Jenny, and Dave.  Nice shirts ladies!

Hi everybody.  I want to apologize for the lack of updates lately.  I drove up to Medford last Friday to welcome everyone home from Portland and have been catching up a little since getting home.  I actually beat everyone to Medford, but only got to see Beth, Collin, their girls, and Connie on Friday.  Dave and Jenny were asked to keep Bennet away from other people for the most part until they had a chance to see the oncologist Monday in Ashland.  This was because they weren't sure of Ben' white blood cell count and didn't want him around people who may be sick.  We did however get to see Jenny, Dave, and Ben on Saturday.  We went by their house and then walked to Lithia Park and had a picnic lunch.  It was the first time I had seen any of them since the day Ben was admitted to the hospital back in June.  It was great to see Benny happy and smiling still.  Dave show be the x-ray of the tumor and I was amazed at how big it was.  Dave also showed me where Ben's port is and other various things leftover from the various procedures.  It was really good to just talk to them and hear all of what has been going on.  Even if it was a short visit and I had to keep my distance from Bennet, it was worth the drive up.

Now for the update from yesterday's visit to the oncologist in Ashland.  They did some blood work on Benny and his white blood cell numbers were back up which is good.  Unfortunately, his red blood cell count is now down and it looks like he'll be getting a blood transfusion on Thursday.  If I'm not mistaken both Dave and Ben's uncle Collin share his blood type, so one of them should be able to donate blood for the transfusion.  It also looks like Bennet, Jenny, and Dave are going to have to go back up to Portland for some appointments, the next round of chemo, and possibly another MRI to check on the tumor.  They aren't sure when this will be yet as they have to make an appointment with the surgeon (I don't know why).  It could be sometime next week, but we'll know for sure when they make the appointment.  I think that's it for now on the updates.

Now for a piece of my mind.  I've been hearing from the family that some people are finding the "F*ck cancer!" shirts to be offensive.  Like I've said before, I'm sorry if they offend you, but its what we're thinking at this point.  There are other options for those that find them to be offensive.  Personally, I don't find them offensive.  My grandfather passed away when I was 7 years old, 11 days after he was diagnosed with Pancreatic cancer.  I also have a number of family and close friends who have lost loved ones to cancer.  As such, I bought one of these shirts for myself and wore it proudly on Saturday when we went to see Bennet, Jenny, and Dave.  Beth and I were both amazed at the reception the shirt received.  Walking around Ashland four people commented on the shirt all in positive ways.  Throughout the rest of the day at the family pub in Medford and out at Southern Oregon Speedway, the shirt received at least four more positive comments, though it was more like 6.  No one told me they were offended by the shirt.  I think this has to do with the idea that almost all of us have been touched by cancer in some way, shape, or form in our lives.  No one likes the disease.  We all share the sentiment the shirt expresses, just not all of us are willing to admit it.  So I'll continue to wear my shirt proudly for my grandfather and Bennet, and those of us out there unwilling to do so.  But please do us a favor, if you find the shirt offensive, we don't need to hear about it.  Buy another shirt or don't, either is fine, but this is how we feel.

That's all.  Sorry for the rant.  I'll be back soon when I have more news.

As always, f*ck cancer, I ride with Clyde!

-Jake

Thursday, July 8, 2010

Guess Who Gets To Go Home!

That's right folks, Baby Bennet, Jenny, and Dave get to go home to Ashland tomorrow!  So here's what Beth told me today.  Ben was under for his radioactive dye test and they took his catheter out at the same time.  They told them not to get his hopes up as he may not pee on his own still.  Well, from what Beth said his diaper was full within five minutes of the catheter removal.  This means that the tumor has already shrunk enough to relieve the pressure it was putting on his bladder and the chemo is working!  From what Beth said, the happy three could have gone home today had they wanted too, but they decided to stay in Portland for one more night to celebrate.  Also, as understand it, Ben is done with Portland except for a check up which will happen down the road a little.  His chemo will now be administered at RVMC.  It will require an overnight stay, but the treatments will be dropped to two days instead of three.  And right now it sounds like there will be two more rounds of chemo.  Obviously, this is all great news.  Benny will be seeing an oncologist in Ashland (I think that's what Beth said).  Obviously, this fight isn't over yet, but it is definitely headed in the right direction.  I'm gonna go celebrate with a beer.  Yay Benny!

F*ck cancer, I ride with Clyde!

-A very happy Uncle Jake

Today

I just wanted to post a quick update to let you all know what was happening in the world of Ben today.  Little Bennet will have what Beth and I are calling a pee test (don't know if that's what its actually called) to see if the tumor has shrunk enough to relieve the pressure on his bladder allowing him to pee on his own again.  They will also be injecting radioactive dye into his system so the doctors can track the effects of the chemo on the cancer.  They won't get the results of that test until tomorrow afternoon I think.  But if everything looks good, Bennet, Jenny, and Dave should be allowed to go home for a little while before chemo starts up again.  So think good thoughts and I'll talk to you all later.

F*ck cancer, I ride with Clyde!

-Jake

Wednesday, July 7, 2010

A New Way to Donate

Hi all.  Like the title says, there's a new way you can donate to Ride With Clyde and help Bennet, Jenny, and Dave with costs that stem from his treatment that are not covered by insurance.  I'll give you a quick rundown as it seems a little bit complicated.

So, US Bank have some thing they call an Internal Donation Site.  Because Ride With Clyde's bank account is set up as a donation account/fund it is included on this Internal Donation Site.  What does this mean right?  What it means is that if you don't want to donate via PayPal because you're wary of putting your information on the internet or you don't want to send a check, you can still donate.  All you have to do is walk into any US Bank branch in the United States and follow these steps:

1.  Walk up to an available teller.  From what I was told you're probably going to need them to call a supervisor because most tellers don't know that the Internal Donation Site exists, so you might want to tell them to go ahead and grab a supervisor.

2.  Tell them that you'd like to make a donation to an account/fund on the Internal Donation Site.

3.  I believe they will then ask you some questions and the information you'll need is as follows:
     A.  The account was opened or established in California.
     B.  The account was opened or established in June of 2010.
     C.  The keyword for the account is Ride.
     D.  The contact for the account is me, Jacob Levi.

4.  I think that's it.  You can then make a donation in the bank either with cash or a check and possibly even by transferring money if you yourself have a US Bank account.

If you have any problems you can ask the branch you're at to contact the Half Moon Bay, CA branch.  Or if they can't figure it out, shoot me an email at ridewithclyde2010@hotmail.com letting me know what the problem is and I'll see if I can get you an answer.

Also, remember you can donate two other ways.  You can click on the donate button on the left of the blog to donate online via PayPal.  Or you can send a check made payable to Ride With Clyde to 1116 Hamilton Lane, Burlingame, CA 94010.

Something I haven't mentioned before but probably should have is that donating to Ride With Clyde is not tax deductible.  This is due to the fact that the IRS would not grant me tax exempt status because right now Ride With Clyde is only benefiting a single family in Bennet, Jenny, and Dave.  Sorry if this screws any of you up, I should've posted it before.

As always, f*ck cancer, I ride with Clyde!

-Jake

Tuesday, July 6, 2010

Quick Update

So Ben is still doing good.  From what Beth said he still isn't having much in the way of side effects from the chemo.  He was constipated last night and was up all night along with Jenny and Dave.  Beth went over and took the little man on a walk down to the river so Jenny and Dave could take a nap.  Bennet has a pee test tomorrow to see if the tumor has shrunk enough to relieve the pressure its been putting on his bladder enough to let him pee on his own again.  That's pretty much it for tonight.  We're still looking ahead to Thursday to see what the docs say about how the tumor is reacting to the chemo and whether or not our brave little trio gets to go home for a little while.

F*ck cancer, I ride with Clyde!

-Jake

Some Stuff From Me

So I haven't gotten a Benny update yet today.  I'm thinking I will, and I will obviously share it when I do, but for now I wanted to address some stuff that I've been thinking about or that has been brought to my attention.

First off, one of Dave and Jenny's friends Tracey sent me a message on Facebook today saying she was thinking about setting up a local bank account through US Bank today.  She thought it would be easier for people to donate if they didn't want to donate over the internet.  It seems to be, as I've been asked a couple of times now, that people are missing the fact that you can donate without donating online.  On the left side of this blog above the "DONATE" button there are instructions on how to do so.  Also, apparently, because the Ride With Clyde account is set up through US Bank as a donation fund/account, there is a way any of you can walk into any US Bank branch and donate directly to the account.  I'm trying to figure out how we do this and as soon as I know I'll post it here.  I'm not doing this to try to deter anyone's fundraising efforts.  I think the more people out there helping out the better.  I do however think that keeping the donated money all in one place makes the most sense and will cut down on the confusion.  Plus, the way I've set this up makes it so no one can get in trouble.  There is a paper trail with the bank of all the donations made.  Ok, enough of my rambling on that.

Now for some fun stuff.  As I mentioned when I first set this blog up, I'm planning on shaving my head to support Ben/show my solidarity with him/hopefully raise some more money for his care.  He hasn't lost his hair yet but Beth thinks he will in a few weeks.  So, this means I need help on two counts.  One, I need ideas on how we can do this.  I have an idea that I'm still waiting to hear back from Beth about, but other ideas would be good.  I'm willing to either come up to Medford so multiple people can attend some sort of fundraising event, or just taken pictures and video of the head shaving.  I need ideas on how to get people to donate and how we should do the actual shaving.  The second thing I need is just kind of odd.  If you can think of celebrities with shaved/bald heads and beards, let me know.  I'm trying to keep my beard but not look completely goofy doing so with a shaved head.  The only person I've come up with so far is Common, and I'm no Common.

Lastly, t-shit orders have slowed down a bit so I thought I'd post the links for all the shirts again.  Here they are:

http://www.cafepress.com/LUYD - Lock Up Your Daughters with Jenny's current profile pic of Benny
http://www.cafepress.com/IKOBD - I'm Kind of a Big Deal with same pic
http://www.cafepress.com/BennyLK - Ladykiller with same pic
http://www.cafepress.com/CNMH - Cancer Is Not My Homeboy (on front) I Ride With Clyde! (on back)
http://www.cafepress.com/EffCancerWC - Original F*CK Cancer! with I Ride With Clyde! (on back)
http://www.cafepress.com/IRWCDeluxe - I Ride With Clyde Deluxe
http://www.cafepress.com/IRWCH - I Ride With Clyde Hearts
http://www.cafepress.com/IRWC - I Ride With Clyde Basic
http://www.cafepress.com/BBGD - Benny's Buddies Go Ducks!
http://www.cafepress.com/BennysBuddies - Benny's Buddies Basic
http://www.cafepress.com/BSFightsCancer - Blue Steel Fights Cancer
http://www.cafepress.com/BEBS - Baby Epps Blue Steel
http://www.cafepress.com/EffCancer1 - F*CK Cancer!
http://www.cafepress.com/FECKCancer - FECK Cancer!
http://www.cafepress.com/HCEffU - Hey Cancer, F*CK You!
http://www.cafepress.com/TEAMBEN - Ducks colors, nothing on back
http://www.cafepress.com/TEAMBEN2 - Ducks colors, "We Ride With Clyde" on back
http://www.cafepress.com/TEAMBEN3 - Another variation of the TEAM BEN shirt with a single childhood cancer awareness ribbon behind the TEAM BEN on the front of the shirt
http://www.cafepress.com/TEAMBENCGB - Team Ben shirt using the Bears colors
http://www.cafepress.com/WrongBaby - This shirt reads "Cancer messed with the wrong Baby" and has three sets of hearts on the front, with I Ride With Clyde and a picture of Baby Ben on the back

Thanks again to those of you already doing your part to help out.  It really has blown me away.

I should be back later with an update, but until then...

F*ck cancer, I ride with Clyde!

-Jake

Monday, July 5, 2010

Another Move

Hi all.  So, as it turns out, Bennet, Jenny, and Dave have moved for the second time in two days.  From what Jenny and Beth have told me, the Ronald McDonald house was not the nicest place.  Apparently there were some um, "urban" members of the community there rapping.  And there were little kids running around getting in Ben's face and touching him.  This doesn't sound like the best environment for a 6 month old undergoing cancer treatment, and Jenny and Dave agreed with that sentiment.  They are now residing in a Marriott in downtown Portland and are excited to be in a nice clean place of their own.  Benny's doctors are good with this as long as they are close to the hospital.  Ben ate some bananas last night which is good.  Also, Dave was able to give Ben his first white blood cell shot today and our brave little guy barely winced.  That helped Jenny and Dave both feel a lot better and helped their confidence.  I think Jenny's going to try giving the shot tomorrow, but I'm not sure.  Not surprisingly if you've seen pictures of him throughout this ordeal, but Bennet continues to be the happy smiley baby that we all love.  That's it for tonight.  Collin and Beth are back in Portland with their girls, so my updates should be more detailed now as I'm ok with bugging Beth for updates and she seems happy to oblige.  Keep spreading the word about the blog and t-shirts.  Keep up those good thoughts and prayers for Bennet, Jenny, and Dave.  And if you have the means, feel free to send donations to help with costs that Jenny and Dave may incur during Benny's treatment.

Until tomorrow, f*ck cancer, I ride with Clyde!

-Jake

Sunday, July 4, 2010

The Past Two Days

Hi all.  First off, I'd like to wish everyone a Happy 4th of July.  I hope everyone has had a fun and safe holiday.

Our little man Bennet had his last chemo treatment of this first round yesterday.  He had kind of a rough day yesterday and didn't eat a whole lot.  Overall though, for the first three days of chemo, that was the only side effect, so he didn't pretty darn good.  Beth said the doctors have gotten his electrolyte levels back in check.  That means that today, Ben, Jenny, and Dave actually got to leave the hospital and head to the Ronald McDonald house.  As Beth said, they'll be staying with Ronnie until next Friday.  On Thursday they'll be doing that radioactive dye test and if everything looks good with the tumor it sounds like Ben, Jenny, and Dave will get to go home for a week or so.  As an added bonus, with it being America's birthday and all, the doctors told Jenny and Dave they could take Ben out of the hospital to watch fireworks.  While it isn't quite the same as being at home in Medford lighting fireworks off with the family (always a good time), it is a little victory.  My updates should be a little better here the next few days, assuming there is news to update you with as Collin and Beth are, I believe, headed back to Portland tomorrow.

On another subject, I just wanted to give everyone a heads up as far as the shirts go.  I ordered four shirts all from different "shops" and was kind of bugged when they showed up and the designs on two of them were crooked.  I went on cafepress.com and emailed their customer service department and told them what was going on and that I wanted the shirts replaced.  In a couple hours I had a response that said they would be doing just that.  So, if you run into any issues with the shirts and your orders, by all means contact their customer service department and see if they can get it straightened out.  Since the shirt links have made their way off the bottom of the page, I'll repost them all here again tomorrow.  Enjoy the rest of your holiday.  And remember...

F*ck cancer, I ride with Clyde!

-Jake

Friday, July 2, 2010

Destroying Cancer, Day 2

Hi all.  Sorry for the late update.  I just talked to Beth and she said Bennet did well with his chemo again today.  She did say he slept a bit more today, which could be a side effect of his treatments.  Beth also said that apparently when a tumor is shrinking, it releases electrolytes into the body.  He was tested for electrolytes today and already has an abundance of them in his system!  So the good news is that the tumor is already shrinking.  The bad news is that these extra electrolytes can be hard on his little body.  They apparently affect his heart and liver, so they had to start Benny on some drugs to counter those things.  Tomorrow will be the last chemo treatment of this round.  Hopefully, on Sunday they'll be able to move down the street to the Ronald McDonald house for a few days away from the hospital.  Jenny also had to learn how to give Bennet a shot today that help keeps his white blood cell count high.  She has to do this everyday, and as I'm sure we can all imagine, it isn't going to be the easiest thing for her to do.  I'm sure she'll be able to do it for that little man though.

That's it from me tonight.  Its been a long week and I'm going to bed.  I'll be back sometime tomorrow with another update.

F*ck cancer, I ride with Clyde!

-Jake

Just a Quick Update

From what Beth told me last night our little man did awesome with his first day of chemo.  He had no side effects and it phased him so little that he slept through most of the treatment.  Today is day two of destroying the tumor, keep up those good thoughts and prayers!  I should have another update after work today.

F*ck cancer, I ride with Clyde!

-Jake

Thursday, July 1, 2010

More Good News

Well the lab results of Bennet's scans that we were waiting for finally came back today.  The neuroblastoma is stage 3 and there is no cancer in the bones or bone marrow!  Benny started chemo today and from what Beth told me he was laughing and giggling all day today.  Right now it looks like he'll have another one of the tests where they put radioactive dye in him to see what the tumor is doing on the 8th.  If that looks good and he's doing well with the chemo, they should get to go home for a week before heading back up to Portland for the second round of chemo.  That's all the baby Ben news for the day.  Keep up the good thoughts and prayers, the fight has just begun.

That's it for now.

F*ck cancer, I ride with Clyde!

-Jake

With A New Month Comes New Hope

Ladies and Gentlemen, today is the day Baby Bennet begins to fight back.  Today is the day chemo starts and we begin to destroy his tumor and his cancer.  Today is the day we begin the path back to that healthy, happy, little man that we know.  It isn't going to be an easy path.  We can't pretend that Ben isn't sick and that the chemo is going to be easy.  But we can come together, as we have over the past week, in our continued support of Bennet, Jenny, and Dave.  They need us today.  They need all our good thoughts.  And though I do not consider myself a religious man, to those of you that prayer, I ask you do so for Benny today.  Together we will all get through this, and we will be stronger people on the other side.

I want to leave you with a little bit of information that Collin gave me last night.  If Bennet does well with this chemo, he, Jenny, and Dave will get to go home during the 3 weeks off chemo.  There will be checkups at home, but they will be home in their own space as a family.  So lets all hope the little man does well and that they get 3 weeks off at home before they have to go back to Doernbecher for round two of cancer destroying.

F*ck cancer, I ride with Clyde!

-Jake